Greetings, Friends!
I'm still in the US - and missing Rebecca terribly. She continues to make slow but steady progress. She is once more experiencing the tremendously demanding aspects of rehab, feeling again like she's climbing Mt. Everest. But she's taking it a day at a time - the only way to face difficult periods.
Robert and Tracey are now in England, and Judy returns to Belgium Saturday. I'll quote from Robert and Tracey's final report:
"This week we watched Rebecca begin to climb the slopes of the mountain, it was hard work physically and mentally and had many highs and lows. Rebecca was physically sore, mentally fatigued, and felt that she had made no progress at all. The reality was that she gained ground in every area that she worked on.
-speech
-muscle strength
-range of motion
-dexterity (she can now put her own chap stick on correctly)
-appetite (last night we finished supper with Rebecca feeding herself
French fries and holding her own beverage)
-nausea reduced by the end of the week
-neuralgia much improved
-endurance, sitting up in the bed and in the wheel chair for extended
periods
On Saturday when we reflected back with Rebecca on the week, she could see how far she had come! She shared with us a card that she had received from a man in England, whom she doesn't know, who has been praying for her. He is by profession a physiotherapist. He talked about the hard journey that Rebecca has to make and likened it to climbing Mount Kiliminjaro. Rebecca shared how encouraged she was from this card."
This is all good news, and we are thankful. She asks prayer for an increased ability to endure the sitting up position in the wheel chair.
I'll paste below, in a PS, parts of Annie's reports from late August just to give those who wish a little window into her situation.
With continued gratitude for your prayers,
Paul
PS
25 Aug
She was so grateful to her friends that they understood her strength was presently limited and temporarily postponed their otherwise much welcome visits. It enables R to focus her energy on the little exercise she could do after a busy working week: she asked to sit in her wheel chair. (She has a special deal with God, who told her He will give her the strength and grace she needs to sit up in it more and more.) Stephen pushed her chair outside and we enjoyed the Belgian sun and the lovely peaceful surroundings. R was happy to be in a place cooler than her bedroom. We didn't stay long but it left R with an incentive to do it again, as she did not feel any side effect nor pain afterwards.
26 Aug
Today has been a good, regular working day for Rebecca. When I came in,around noon, she told me she was not well. But after the meal all the symptoms of nausea disappeared. Rebecca was just hungry! She says she feels nauseated, when in fact she is hungry. So it is a matter of learning the normal "signals" again. Often now, Rebecca uses the fork to pick up and feed herself with the fruit she has for dessert. The only thing we do is to hold the plate for her so that she can see it.
Ergo was a hard working time: R. had a board with rows of holes 5 pegs she had to take and move to the next hole on the right, till the end, and back. The concentration needed makes the brain work hard! But R. did it more and more precisely and quickly as the exercise went on. After that she went straight into physiotherapy, with only 10 minutes break in between. That was harder still: Frank "tied" her on the tilt board and moved it as vertically as R. could stand it, to help her to get used, more and more, to that position. R. felt a bit sick and dizzy, but it didn't last.
27 Aug
Today has been a bit more difficult. After consideration, we traced it back to a not so good previous night (too late to bed). When that happens, the whole next day is difficult and the various pains seem to "waken up" one after the other.
28 Aug
At noon today, Rebecca ate half a normal meal, which is pretty good (the hospital meal was more appealing than usual today), and then had a short nap before going into ergo. But Stephen had to take her back a short time after that, as Rebecca was feeling sick, and couldn't stand the wheel chair. You well know how just getting out of bed and into the chair is a tiring exercise in itself!. Rebecca said she was discouraged. I suggested we would resume the conversation on the subject when she is rested. She managed to have a 10 minutes nap before the speech therapist came (life is busy here!). As R. was tired, Gertie made her work on the breathing muscles, and the diaphragm. I see the progress.
Then Rebecca and I resumed our previous conversation... I pointed that she is less well each time it is unusually hot and humid outside - and you know how hot her room can get! Then R. remembered she had been told that heat especially affects spine injury patients' blood vessels. Stephen confirmed that it does make a difference, and that he has another patient who is usually using his wheel chair all day, but has to lie down when it is too hot. It is medical knowledge that the effect this sort of weather has on the blood vessels makes sitting up much more difficult ( Stephen says unusually cold weather would have the same effect). When Rebecca
heard that, you should have seen her face! " Light " came back! Praise the Lord! It helps so much to understand what is going on in your own body, and that it is no just you not being able to make it!
Then Rebecca courageously decided she'll go to the afternoon physiotherapy session, and will try to do as much as she could. Well, this incredible lady of yours managed the entire session! Of course she was badly wanting to lie down at the end of all that.
Franck works on the shoulders, and it shows. It enables Rebecca's hand and arm to be much more mobile, and reach further up on her face.
Well, that was my last day with Rebecca... I will miss her, and you all, greatly. These weeks have been intense, but such a blessing !
Many blessings
Annie
30 Aug, from Robert and Tracey
Today we had Steven do the ergo in her room, I don't think she was mentally ready to get in the chair to go from ergo straight to kine. Steven worked on both her right and left arms. Rebecca is able to move the right arm a little higher each day and is improving the control she has in holding it and moving it slowly to her side. Steven added a session with him tomorrow afternoon and wants her to go to the therapy room so they can work on other areas. Rebecca told him that she would definitely do that.
I went to Kine with her and watched Frank work her, and it is work. It is no wonder that she is tired after each session. Today Frank spent quite a bit of time on the right hand stretching it and trying to get her to hold her hands above her head, as she was laying stretched out. It is still work, but I don't think it will be too long before she can do that by herself, her shoulders are getting a little stronger each day and she is sitting up more for eating and in the wheel chair. Even the days that she doesn't feel well she has at least been attempting to get in the chair, and stays a considerable amount of time.
Frank continues to put more and more weight on her leg exercises as he is preparing her legs to learn to walk again.
Nausea seems to be still troubling Rebecca on and off, sometimes it is because she is hungry and has started to eat a little when she feels it coming. Some of it I think is the heat and the fatigue, we need to continue to pray that is dissipates because it drains her, and she thought that the nausea was over.
We continue to hold you both up before the Father, our love to you and prayers, Tracey and Robert.