Rebecca's Journey - 18
Greetings Friends,
It's Monday evening and we're back at Pellenberg after a good weekend at home. Judy arrived Friday morning - so good to have her back! Rebecca was moved today to a ward for patients who return to their residences every weekend, and the doctors have set mid-April as the date for her permanent return home.
Rebecca has some thoughts she wants to share. After I take dictation from her I'll add a note with additional information, including the results of last week's "round table" discussion with the doctors and therapists.
"Last week was a very good week. I felt so blessed by the presence of the Lord, and new vision and hope. My neuralgia has improved, and my gall bladder problem seems to have been resolved. My neck is improving as well. I know this was a direct result of your faithful prayers.
They say in rehabilitation that even in the best weeks we will have some bad moments. Wednesday morning was one of those bad moments. It began when a new student nurse was assigned to give me my bath. She couldn't hear me, (or she couldn't understand my English; I'm not sure which.) She kept shouting: "What?" Since we are a family who say "Pardon?" I'm afraid that alone put us off to a bad start. It was down hill from there. I ended up being irritable and fussing at her. When she left, I felt so
badly. I called her back in and apologized for my attitude, and asked her to forgive me. This is the 3rd time I've had to do this with a nurse. And from their response, I don't think it is something they are used to. In all three situations it has resulted in our being close, and developing a friendship. This little student nurse was no exception.
It reminded me of the value of the Lord's admonitions to forgive, and to ask forgiveness. I realized that when I say: "I'm sorry; would you please forgive me?", that it is taking the humble place, saying that I was wrong. Andrew Murray said that humility is the foundation for all other virtues. I think that one of the greatest ways that humility is expressed is to ask for forgiveness. That humility draws God's grace to us and to our
situations."
Paul again! The meeting with the team working with Rebecca went well. The goal was to get together all those involved with her rehab and discuss her situation in the light of her move home. Rebecca and I included Robert Vaughn in the discussion. Robert is an American nurse who has been a friend for sometime. He and his wife, Tracey, an English lady, will bliving here for the next several years studying French and tropical medicine. They've rented the house directly across the street, and will be involved with Rebecca's care during their stay here. It was obvious that the team cares a great deal for Rebecca, and has invested much time in consideration and discussion about her situation. The principal elements of the discussion were:
~The needs of and treatment for Chronic Fatigue Syndrome are in direct conflict with those of high spinal cord injury. Rebecca's fatigue/weakness (plus the tendency to nausea, etc. with physical exertion) has limited the effectiveness of the therapy and required regular rethinking of goals. This has been frustrating to both the medical staff and the therapists. The head of the Physical Therapy Unit said he felt that Rebecca had the possibility of doing more, recovering more, but that until the CFS has resolved some, the progress would be slow and interrupted. They all agreed that she is highly motivated.
~They suggested that once she is home the physical therapy all take place in our residence so that Rebecca doesn't have to use strength for the trip to and from the hospital. This is satisfactory to us, and we're in the process of deciding on a local physiotherapist.
~The speech therapist is suggesting the use of a personal microphone/amplification system so that Rebecca can more easily enter into conversation. When she has strength enough to have voice she won't use it. It will only be for the times she doesn't have energy to create voice. She'll also have a special unit on the phone that will amplify her voice and allow easier phone conversation. (Some of you will greatly appreciate that.)
~The Occupational Therapist (OT) is recommending full time nursing care. Judy and I both feel this will be necessary. At this point we can manage weekends, but a 7/7 schedule would not be maintainable for long. She usually needs a nurse during the night as well. Stephen has been on call for this. When he has been away the daughter of a friend of ours has come to be on call. Neither Judy nor I could get back to sleep if wakened a couple of times during the night. So we are considering this aspect now.
~The OT is also working with the architect to design the special elements of her new room and bathroom. There are many things available, we just need to see what is relevant for Rebecca.
~The OT is ordering a one-handed keyboard for Rebecca. This is in a U shape and will be much easier for her to manage than the long, two handed one. He is also ordering several demonstrator electronic wheelchairs for her to choose from. The PT is arranging for the portable wheelchair that we'll use for trips away from home.
Well, that's this week's installment of the Journey the Lord has us on during this phase of our lives. With His presence and guidance, we are in great peace.
Our love to you all,
Paul